Giant Axonal Neuropathy (GAN)

WHAT IS GAN:

Giant Axonal Neuropathy (GAN) is a recessively inherited condition that results in progressive nerve death. GAN generally appears in early childhood and progresses slowly as neuronal injury becomes more severe. As the disorder progresses, patients become quadriplegics, dependent on a feeding tube and ventilator before dying typically in the second or third decade. However, we now have some confirmed GAN cases that are milder progressing, and also have confirmed cases with straight hair. The doctors working with Hannah's Hope Fund now suspect that CMT Type 2 patients, whose causal gene has not yet been identified, may have GAN. Hannah's Hope Fund has a collaborator for GAN gene sequencing. For more information, visit the Doctors and Families page.

OUR MISSION:

Hannah’s Hope Fund for Giant Axonal Neuropathy, Inc. is a 501(c)(3) public charity whose mission is to raise funds to support the development of a treatment and cure for GAN, and to be the resource for doctors, scientists and families world-wide.

HOW YOU CAN HELP:

Donate Now or join the many GAN families across the Globe and help us raise funds for a treatment and cure which will save their precious lives.  Together these families have all come together to help save their children but they need your help.  Help them raise funds towards the continued development of the gene therepy and a therapeutic drug approach.  Help Hannah's Hope Fund spread awareness so that other families will know they are not alone.  

 

Ways you can help cure GAN this Holiday Season:

Alternative Giving

What  do you give to the person who has everything? A donation to Hannah's Hope in their honor.  Visit our Alternative Giving page.  We will send a card via US Mail to the recipient of your choice.

Shop for Hannah's Hope 

Sign up for Amazon Smile. Amazon will donate .5% of the purchase price to Hannah's Hope.  You must shop Amazon at "SMILE.AMAZON.COM" for HHF to receive a donation.  Be sure you see "Hannah's Hope" in the top left corner of your window. 

Sign up for iGive.com. iGive will donate $5 per new member from now until December 15. There are over 1000 retailers who participate with iGive. You can use iGive AND Amazon Smile on Amazon, and HHF will receive 2 donations!

Buy Hannah's Hope Christmas Logo Merchandise at our Cafepress store.  $10 of every item sold will be donated to Hannah's Hope! (Except for small items like ornaments and key chains - $5 will be donated.)  There are T-shirts, sweat shirts, hoodies, bags, aprons and much more.  Shop to help cure GAN!

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All website content is the opinion and observation of parents, not medical professionals. Please consult your medical doctor for medical advise.