Araghya Malway was born on January 31st, 2003 and she was a dream came true for her Mom, Indu, and older brother whose one wish was to have a little sister. One thing, which the family used to feel proud about, was Araghya’s kinky/curly hair. Her Mom started calling her GOL (round) because her face, eyes and lips are all round, and above all her hair. Little did they realize her beautiful hair is a trait, symptomatic with GAN.
Araghya as an infant used to cry a lot. At age 1, she started walking. Shortly thereafter, her Mom started noticing her frequent falls. After visits to the pediatrician as well as an orthopedic doctor she was diagnosed with “FLAT FOOT” (a condition that results in a fallen arch with the foot pointed outward). Accepting that diagnosis the family took a deep breath and just enjoyed each moment with a bright, vibrant, loving little Araghya. Until, her 6th birthday party, where her uncle insisted they take her to a neurologist with the result being that Araghya has GAN.
“Yes, I and the entire family, are shattered, badly hurt and disturbed but never ever give up HOPE”, said her Mom, Indu. Araghya is a very confident young girl who helps in the kitchen, rearranges her wardrobe, and sometime does her wash. She loves dancing, singing, shopping & paying bills. Araghya attends a regular school. Is in the 3rd grade but is slow in writing. She started OT and PT 4 years ago, 3-4 times a week but not very regularly since she has long school hours. “One thing which I always kept high is her SPIRIT,” said her Mom.
“Since, I came in touch with HHF and Lori last year, I became hopeful,” said Indu.