YOU DID IT!!!!!
We asked you to match the generosity of Hannah’s Hope’s “Guardian Angel”, Doris Buffett’s Sunshine Lady Foundation $450,000 grant by April 30,2013. You met that goal by the end of February. Then we asked you to help us reach $1 Million by April 30th, and you blew that goal away as well.
You helped Raise over $1Million in less than 8 months.
As of April 30, 2013, you have raised $1,074,165
There are no words to express the deep gratitude we, as parents, family and friends of the children with GAN feel towards the limitless generosity we’ve experienced from HHF supporters.
The cure for GAN is within reach, and because of you we can now start the Clinical Trial.
Giant Axonal Neuropathy (GAN)
WHAT IS GAN:
Giant Axonal Neuropathy (GAN) is a recessively inherited condition that results in progressive nerve death. GAN generally appears in early childhood and progresses slowly as neuronal injury becomes more severe. As the disorder progresses, patients typically become quadriplegics, dependent on a feeding tube and ventilator before dying typically in the second or third decade. However, we now have some confirmed GAN cases that are milder progressing, and also have confirmed cases with straight hair. The doctors working with Hannah's Hope Fund now suspect that CMT Type 2 patients, whose causal gene has not yet been identified, may have GAN. Hannah's Hope Fund has a collaborator for GAN gene sequencing. For more information, visit the Doctors and Families page.
Hannah’s Hope Fund for Giant Axonal Neuropathy, Inc. is a 501(c)(3) public charity whose mission is to raise funds to support the development of a treatment and cure for GAN, and to be the resource for doctors, scientists and families world-wide.
HOW YOU CAN HELP:
Donate Now or join the many GAN families across the Globe and help us raise funds for a treatment and cure which will save their precious lives. Together these families have all come together to help save their children but they need your help. Help them raise funds towards the continued development of the gene therepy and a theriputic drug approach. Help Hannah's Hope Fund spread awareness so that other families will know they are not alone. Please contact Kelly Obermayer to find out how you can become a Hero for Hope.