BLOG – What’s New?

//BLOG – What’s New?

BLOG – What’s New?

2202, 2014

Out of the Ice Cube Tray, into the Ice – Polar Plunge!

February 22nd, 2014|

2102, 2014

A rare disease a day: Giant Axonal Neuropathy

February 21st, 2014|

In honor of rare disease day, I am using my Monday-Friday posts to raise awareness of some of the rare diseases as brief posts. Following on from past installments of “A rare disease a day” […]

2501, 2014

Adventures of Ruka Bean

January 25th, 2014|

2001, 2014

Write the Happy Ending

January 20th, 2014|

2503, 2013

Fighter moms – rare disease patient registry collaborations

March 25th, 2013|

1401, 2013

Sell Your Junk on eBay to Help HHF!

January 14th, 2013|

When my Mom finished packing to return home after Christmas, she dropped the Vera Bradley handbag, pictured above, on my sofa and said, “I’m sick of this purse.  Just throw it away.”  Since I’ve been […]